Friday

Bethany is doing very well. She is going to be in PICU until Monday. The only reason she is still there is because of some of the medicine she is on but other than that she is great. It i getting harder and harder to believe she actually had open heart surgery. She is eating better than she ever has. Trying to do things she was doing before the surgery but we have to keep her calm. The best hing today was we finally got to hold her today!!! She loved it. she just kept looking at us and giving us the look like FINALLY YOU JERKS! Grandmas were happy to get to hold her too. We have been so lucky to have the nurses and Dr.s that we have had. They have been GREAT, WONDERFUL, AMAZING!!!!!

Thursday...

Man are we tired. We still haven't been able to hold her yet but probably tomorrow. Today they took out the chest tube, 3 of the 4 IVs, and did an echo cardiogram. They ended up putting in an iv again though. The echo showed her heart is still enlarged because it is trying to learn how to work the new way. It is so used to working the old way that it will take some time for it to adjust. She is doing really well and should be able to move out of the PICU tomorrow. We are hoping.

Wednesday Update

When we saw Bethany this morning she was looking good. They had taken her off oxygen and her levels were great...better than before! Later on they took her off the temporaory pacemaker and removed the catheder because she was drinking and figured she would pee on her own. After they took her off the pace maker she started to lose coloring and turing pale again so they put her back on and she is doing great. She hadn't pee'd for hours so they put the catheder back in. Because she is still being paced they will not let her move out of PICU. Other than all of that she is doing really well. She has been slightly active by waving a little bit(only because I think she is hallucinating). She still gets mad at us because wewon't pick her up.....we can't yet and that is the hardest part for now.

Bethany Update....

The surgery went very well. Everything is in the correct place and blood flow is going the way it needs to go. The yput in the pacemaker leads for later on when she needs the pace maker. We got to see her for just a minute but she looked good. She was pretty pissed because we couldn't pick her up yet though. I think we were most relieved when they told us she was off the machine and her heart was doing what it is supposed to be doing. We will kepp the updating. Thank you for the prayers!

Bethany...

Ok, we found out today she will have the lead put into her for a pace maker but she will end up having a pacemaker put in eventually. We will go in at 7am tomorrow to start and they say it will take all morning. When they are all done she will be in PICU and we will be able to visit her. The nurse will be checking in with us every hour to give us updates. We will do our best to keep posting on here.

Jan. 2, 2009

Ok, so it is almost upon us but first let me tell you about the Holidays......

Bethany turned 1 on the 19th! WOO HOO! I can't belive she is getting so big. She had a Nemo Party and we had a house full of people. She wouldn't eat the cak ethough...I think she was getting too tired but she just wanted to walk all over the place. Santa showed up and gave everyone a present.

Christmas was a blast. Tyson video taped the action while i tried to help Bethany open gifts. She wasn't really interested in them. Hailey got everything she wanted...Hannah Montana, Littlest Pet Shop, DS and WII games. SPOILED!!! We ate breakfast with the whole family. Again, we had a house full. It is so worth it though.

Ok, so Tyson and Bethany have have been very sick lately. They are getting better but it couldn't be worse timing. My belly has been hurting but I think mine is just stress and nerves. We are just a few days away. We will try to keep you updated on this blog on how things are going.

Next Week

So next week is a very busy week! On the 16th we have Haileys acting debut at her school. She is playing the Moon in the school play about the solar system. She even gets to sing. Now if you know Hailey, you will know this is the dream role...the role of a lifetime! ACT and SING!
Next we have Haileys Christmas Dance Concert at Northridge High School on the 18th (this is also mom's 50th birthday). So first she gets to act and sing and now she gets to DANCE! She has the Trifecta!!! Now that is talent folks! All of this is free entertainment to the public so come and enjoy.
Then on the 19th we have a very important day....Bethany's first birthday! I can't believe she is one! She is getting so big so fast. We are having Nemo parting because she loves fish! She just stares and laughs at them!
Then we finally get to celebrate mom's b-day on saturday. BUSY BUSY BUSY!

Bethany Update....again....

Ok, so we found out when her surgery will be...January 6, 2009. We have to go in on the 5th for blood work, urine test and a chest xray. She will be in surgery for about 5 hrs and in the hospital for at least 2 weeks. We will keep updating as we get more info.

Bethany......

Bethany update...
Bethany had a cardiologist appointment yesterday. This was just a three month check up to see how things are going. They did a sedated echocardiogram. When we got to talk to Dr. Arrington he told us that the blood pressure in her lungs is high and her weight is low so he wanted to talk to the head surgeon to see what he thinks about doing the surery now or wait until she gains more weight. He called us later that night and said they both agree that it needs to be done now. Dr. Arringon put in the order to do the surgery within the next month. We should get a phone call next week to let us know when they are going to do it. We are hoping to do it after her first birthday. If possible the week after Christmas. We want her first birthday to be at home with her family. We will keep you all posted on what is going on.

November...#1

So far November is good. Halloween was fun the girls had a good time. Bethany fell asleep but I am guessing she didn't care much either! Hailey first went trunk or treating with her friend Emily(devil) then I took the two of them around the neighborhood. We came back and I dropped them off to Emilys dad and he took them out for a while until the rain came down.
Tysons sisters came up here from Mesquite. The girls just love them and Uncle Max. They stayed with us for a few days and we all hung out. We had a lot of fun playing the WII fit! Uncle Max, you are not obese! Not even close! Just like Tyson is not overweight. You guys are welcome here anytime!

Uncle Max, Hailey, Aunt Amberlynn
FYI.....
Bethany has her next cardiology checkup on the 25th of this month. This is a big one. She will be sedated and they will be doing an ultrasound, x-ray, and MRI at this one. They will be checking all the organs and making sure the heart is behaving! Last time they were a little concerend about her liver because they saw it too was enlarged so we will see...keep your fingers crossed!